Their Moms Drank Alcohol While Pregnant – Here’s How They Are Doing Today

Edmonton and area Fetal Alcohol Network Society

Independent Journal reports on four women who drank alcohol while pregnant and how their children are doing right now.  Here is the full report.

Doctors have long warned women of the risks associated with drinking while pregnant, but for one reason or another, it doesn’t stop some expecting moms from doing just that.

The American Academy of Pediatrics recently identified prenatal exposure to alcohol as the leading cause of preventable birth defects, such as intellectual and cognitive disabilities appearing later in life.

While you often hear this story told through a doctor’s perspective, here are four people who are living proof that drinking while pregnant can have life-long effects:

Rebecca Tillou

As the National Organization on Fetal Alcohol Syndrome reports, Tillou was adopted at birth, but her parents say they suspect her birth mom was drinking while pregnant with her. While nothing was confirmed, she recalls getting ear infections as a…

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2015 National FASD Diagnostic Guidelines

How is FASD Diagnosed?

National Guidelines outlining the diagnostic process for FASD have been in place since 2005 in Canada. These National Guidelines were most recently revised in 2015 (http://www.cmaj.ca/content/early/2015/12/14/cmaj.141593 ).

Making a diagnosis of FASD requires a multidisciplinary team and involves a complex physical and neurodevelopmental assessment. A multidisciplinary team is defined by the involvement of several professional specializations. Core team members will differ across the lifespan from infant to adulthood, these include: Pediatrician/Physician, Child Development Specialist, Psychologist, Occupational Therapists, and Speech Language Pathologists, and a Coordinator. The professional team assesses the following using their particular expertise; family history, maternal alcohol history, physical examination, differential diagnosis, sentinel facial features, and a neurodevelopmental or brain domain assessment. The National Guidelines also makes recommendations on nomenclature, or terms applied for FASD.

The 2015 National Guidelines define FASD as the term that has been adopted to describe a broader spectrum of presentations and disabilities resulting from alcohol exposure in utero. The two current diagnosis for FASD include: 1) FASD with sentinel facial features and 2) FASD without sentinel facial features. A third “at risk for FASD” which accounts for clients that at the time of diagnosis do not meet the full criteria. This category is part of the guidelines but is not a diagnosis of FASD.

For further information on the NW FASD Diagnostic Clinic please contact:

Vanessa Norris, NW FASD Diagnostic Clinic Coordinator

780-357-4996 or email vnorris@cityofgp.com

 

 

 

 

NW FASD Network hosting a FREE webcast–Supportive Housing for people with FASD

Register now for the January 20, 2016 Fetal Alcohol Spectrum Disorder (FASD) Webcast

Join us at Community Social Development (10030-102 Ave.) for this free, one-hour and thirty minute webcast titled: Panel Discussion: Supportive Housing for people with FASD.   Popcorn and pop will be supplied.

This webcast will focus on supportive housing for people with FASD in Alberta and some of the hot button questions, best practices, successes and failures that have occurred around this issue.

The panel includes experts in supportive housing as well as people involved in the construction. There will be discussion on broad concepts and a focus on supportive housing for the FASD community.

AGENDA:

Date:   Wednesday, January 20, 2016

Time:   2:00 pm – 3:30 pm

Speaker:   The panel will include people who have developed FASD supportive housing initiatives in Alberta, including completed projects and ones that are underway.

If you can not join us feel free to register and watch from your own location.

Register Here 

Cost:   FREE! Please share with your networks

Format:   Live panel discussion followed by Q & A

Q & A:   You can ask questions to the panelists through live chat

UPCOMING WEBCASTS: Join us the 3rd week each month until July 2016 to take part in discussions on:

•    February: FASD Prevention Conversation

•    March: FASD 101 for Justice Workers & Lethbridge Police Service FASD Support Training

•    April: Practical tools for the frontline worker

•    May: A Caregivers Perspective

•    June: Trauma Informed Care

•    July: New Diagnostic Guidelines for AB & Best Practices for Clinics *Note: Topics and dates may change. We will send email updates to keep you informed.

Watch other Human Services webcasts

PREVIOUS WEBCASTS ONLINE!

Watch previous webcasts on the FASD Website

ABOUT THE FASD STRATEGY & WEBCASTS

The FASD Learning Series helps individuals, caregivers, front-line workers and professionals learn more about FASD, and how to support persons with FASD. The webcast and videoconference educational sessions cover a broad range of topics and are accessible by both urban and rural audiences.

Alberta’s FASD 10-Year Strategic Plan outlines an FASD Service Framework focusing on awareness and prevention, assessment and diagnosis, and supports for individuals with FASD and their caregivers. All services and activities are built on a foundation of stakeholder engagement.

NW FASD Network 2016-18 Request for Proposal Process is now open

 REQUEST FOR PROPOSALS

 This is to state that the NW FASD Request for Proposal process is now open. In order to best serve our entire region, the NW Leadership Team will be seeking proposals in the following two areas:

  1. Prevention (limited to targeted and indicated prevention).
  2. Supports for Individuals and Caregivers.

We will continue to fund in the three geographic areas:

The GEOGRAPHIC AREAS included in this year’s proposal process are known as North, Central and South.

For more, information please go to the full Request for Proposal Document.  See the link below.

The Northwest FASD Network Leadership Team is requesting detailed and comprehensive proposals until 2:00:00 pm local time Friday, February 12, 2016 for the following project:

RFP-03-431-16

FASD SUPPORTS AND SERVICES

Documents and general information are available on the Alberta Purchasing Connection website at www.purchasingconnection.ca or from the office of the Purchasing Manager, City Hall.

 

Address:         City of Grande Prairie, 1st Floor, City Hall

Courier:          10205 – 98 Street, Grande Prairie, AB T8V 2E7

Mailing:          PO Bag 4000, Grande Prairie, AB T8V 6V3

Submissions can be couriered, hand delivered or mailed to the Purchasing Department. The submission must be in a sealed package and clearly marked with Proposal name and number.

INQUIRIES

All questions should be submitted in writing using the Form for Written Questions (Form B) and faxed or emailed to the City of Grande Prairie, Purchasing Department, City Hall, First Floor, 10205 – 98th Street, Grande Prairie, AB.

A community information session will be held on January 22nd at the Community Social Development Department, located at 10030 102 Ave Grande Prairie, from 1pm-2pm to go over the RFP process and answer questions pertaining to the requirements. Teleconference will be available by calling 1-780-830-7099.

SUBMISSION INQUIRIES                                TECHNICAL INQUIRIES

R.D. (Bob) MacNeill                                                    Gwen Vekved

Purchasing Manager                                                  FASD Network Coordinator

Phone: 780-538-0344                                                 Phone: 780-357-7508

Fax: 780-538-4880                                                      Fax: 780-830-5025

Email: purcont@cityofgp.com                                  Email: gvekved@cityofgp.com

 

ISSUE DATE: January 8th, 2016

 

The Most Powerful Video on FASD We Have Seen

FASD: Learning with Hope

The Most Powerful Video on FASD We Have Seen.jpg

By FASD_Mum and FASD_Dad

We don’t normally do posts like this, but we were both riveted to the screen this morning.  This is a perceptive and authoritative video explaining Fetal Alcohol Spectrum Disorders and the life-long impact even small quantities of alcohol can have on children before they are born.  If you would like to better understand our child, and others like him, please give yourself 26 minutes to watch this film.  The young 10-year-old girl in this film could be our son.

And please, support those around you who are or may become pregnant by helping them to avoid alcohol during those precious months. Experts in this video show the proof that even a small amount of alcohol in utero at the wrong point in development can have profound and enduring effects on a child.  And please also encourage our societies to help meet the needs of those loved ones…

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